Over a month ago we visited a nutritionist again. Since Ty started crawling near the end of January, he has had less patience for sitting still to eat. With Ty moving more and eating less, he was starting to look thin and tired. His body burns a lot of energy to compensate for his heart function, kind of like running up an escalator that's going down. The nutritionist put him on a renal formula that really packs a punch with 425 calories in every 8 oz can. Ty seems to like the vanilla flavor, and he already appears to be filling out. Here is a photo of Ty Man from about five weeks ago when he looked his thinnest. Consider this his "Before" photo. Hopefully soon I can share an "After" that will show significant growth.
When we first walked into the hospital room, Ty started to cry again. The nurses gave him medication to calm him down, and within ten minutes he was acting loopy. I was cradling him in my arms and felt as he grew more and more relaxed. He then started to poke at my face repeatedly and in slow motion, and then he would giggle very slowly each time he got me. It was quite entertaining. Thanks to the medication his echo went smoothly and he was back to his normal self after a good nap.
Today the doc called to inform me that their goal is to get Ty to 2 years old before surgery. First of all, I was shocked. I had no idea he could still go so long without surgery. Their reasons for waiting are these: it's easier to operate on him the larger he is, his kidneys could possibly recover some more before then, and the larger he is the more likely they can put in a larger conduit that would allow him to go longer (possibly into his teens) before he would need his next surgery. Essentially, if we can get him big enough before his first surgery, he may be able to have one less heart surgery later on in life. Bottom line: this is good news!
The doctor reassured me that the change in Ty's heart will be very gradual, and that as long as he is doing fine and still has plenty of energy there is no rush. I assured him that Ty certainly is not lacking energy. I can hardly believe how much that boy moves around for someone who is supposedly working harder to do so.
That brings me to this: Ty is 14 months old now, and it seems he only stops moving to sleep. Even when he's sitting to eat, he's still swinging his legs, bouncing, or dancing in his chair. He is a big fan of the cozy coupe, walker, mini trampoline, and riding toys. He recently climbed his first set of stairs, and just yesterday he repeatedly climbed up and down the one step in our relative's living room. If he's in a stroller or shopping cart he wants it to be moving quickly, and although he isn't walking yet I imagine it won't be long before he starts. If he gets even more energy after having heart surgery I don't know how I will ever keep up with him!
In other news, Ty received his last synagis shots last month (to protect against RSV), and although we are thankful for them we are happy to be done with them until next winter. Lastly, there has been another change to Ty Man that you can likely spot from the pictures below. Ben finally convinced me to buzz Ty's hair myself, so he is now sporting a new 'do. Now to wrap up this post, here is a batch of photos taken since my last post. Enjoy!